The Voices of Experience: The Ethics of Partnering with Families in Paediatric Research

Family-centred care is considered best practice in paediatric clinical care, so why isn't this widely adopted in paediatric research? The voices of experience include those of the children and families and therefore partnering with families in research should also be considered best practice? In this episode of Essential Ethics, the authors explored this concept through an ethical lens – what are the benefits and challenges of engaging families in research? How does one honour the family experience? How does one ensure the important voices are heard? What does one need to be able to do this effectively?